Contact

I am a very private person and will not be found online anywhere else outside of this blog. I have only met a handful of other patients in-person, but I do not want to socialize anymore about this disease now that I have put it behind me. I apologize, but due to overwhelming demand on this website, I had to take down my email and lock up my Facebook account, since I do not have the mental energy to answer so many emails and messages that pour in from sufferers around the world. Please be reassured though, you are not alone in this disease. If you are looking for help, I have resources and support groups on this blog for you to turn to. I will leave this blog up forever, and as time passes, I know that it will one day become outdated. I am sure there will be many more new and different testing technologies, doctors, and support groups. 

I was told I was one of the first chronic UTI / interstitial cystitis patients to speak out online about my experience so vividly and so publicly when I started this blog in 2018. I am sure there will be many more stories and brave women and men after me, who will tell their stories of their struggles with this horrible disease.

Have Questions?
If you have questions about my diagnoses, DNA tests, or healing journey, you may find most of the answers in the Ask Me section. Some of it may be outdated by the time you have found this website.

Want Immediate Support?
If you are looking for immediate support and guidance from other patients, support groups, or medical practitioners, visit the Who Can Help section. Some of the groups may no longer be around by the time you have found this website.